Join Starlight Children's Foundation Social Networks
You'll want to know about your options. Listen to college students living with Crohn's (this link takes you to the IBD U website).
Spread the word on Starlight's Facebook page!
Share your IBD experiences to encourage and empower someone else. Submit your story here.
What You Need To Know First Your Doctor's Role On The Team
Doctors. What's the first thing that comes to mind when you think of your doctor?
If you see your doctor as a "superior," a "boss," or even an "enemy," getting well again might be a long, uphill battle. What would happen if, instead, you saw your doctor as a coach to get your body to perform at it's healthiest...or a partner, or maybe even a friend? Pretend for a moment that you're both contestants on a reality TV show called The Amazing Race To My Health. You and your doctor are a team, and the better you work together, the faster you'll win that race.
Your Role On The Team
There are certain things your doctor-patient team can't succeed without, and these four are up to you:
2) Trust. Believe that your doctor knows what he or she is doing and always has your best interests at heart. If he or she orders another test or puts you on new medication, remind yourself that it's all part of the grand plan to get you healthy. Believe that your doctor will keep your discussions private.
3) Communication. Feel like your doctor speaks some strange language called IBD-ese? Here are some of the words and terms you'll hear a lot:
Ask questions when you don't understand. Ask questions even if you do understand, but want to know more...about your diagnosis...about what to expect in the future...about your treatment. Actually, ask questions whenever you have them, even if you think they're dumb or you should already know the answer.
Remember that the unknown is much scarier than the known. When you understand and expect stuff, it's a lot easier to deal with.
4) Cooperation. Yeah, we know. You can't stand taking all those pills. You hate not being able to eat your favorite foods. But when you blow off your doctor's advice and instructions, you're just helping to keep yourself sick.
Since this is an equal partnership, you should expect your doctor to pull his or her weight by:
If you've done all you can to make your doctor/patient team work, but you and your family have doubts or don't feel comfortable with your doctor...FIND A NEW ONE! A positive partnership is very important to your treatment.
Your Doctor's Role On The Team