Join Starlight Children's Foundation Social Networks
You'll want to know about your options. Listen to college students living with Crohn's (this link takes you to the IBD U website).
Spread the word on Starlight's Facebook page!
Share your IBD experiences to encourage and empower someone else. Submit your story here.
Well my story is in the middle right now. I was diagnosed with Crohn's Disease 2 years ago. I was 11 when I was diagnosed. I'm now 13yrs old. Back then I didnt know what was happening to me. I thought maybe I just ate something bad but after a month of continuous bleeding/weight loss I finally told my mum what was happening and like any mum, she was scared for me. After being put on the drugs Apriso, Prednisone, Flagil, and Omeprezole for a couple of months, it went away and I went back to being the head captain of the soccer team and all that jazz. I got better to the point where I could get off the meds, so I did every once in awhile. I'd get pains in my stomach but they'd go away. Just recently, back in February, I started having a flare up. We went to my doc and he suggested Remicade. My mum's on the fence about it because my sister already reacted to a drug that had a low reaction rate when wen she was a child. So I'm currently on a feeding tube and have been for the past 2 weeks. I've missed an entire month of school and all of my soccer season. Soccer is my life and some days I just felt like running away from the world. All my friends would ask me if I was alright or if I had moved, which hurt more knowing that they were out living healthy lives while I was in a hospital, miserable. People handle this disease differently. Wether you cry or you look ahead, we are all beautiful! Disease or no disease! When I'm sad/depressed, I remember that I am loved. When I got out of the hospital my teamates made me posters and signed a Messi brand ball for me. I couldnt ask for a better surprise than that!! I go back this Wednesday to talk about what's been happening. Hopefully I get this tube out!! Basically y'all it's hard having this, but there's always going to be someone cheering you on from the sidelines. WE. ARE. LOVED. And this disease? It's just a bump in the road that we are meant to overcome, not fear and tremble! This support group is how I know I'm not alone out there!! Neither are you! This is just another mountain I wanna move <3! Love y'all. Wish me luck!!!